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THE UNSEEN DISEASE

 
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Palynziq: The First Day

My last few posts were interviews with people who were at different points on their journey with Palynziq. It has been great to follow...

Palynziq Spotlight: Alina

Happy Saturday! This week's Palynziq Spotlight is with Alina! I love how social media can bring people from all over the world together...

Palynziq Spotlight: Bobby

This week's Spotlight is with Bobby! We connected through my PKU instagram. Check out his interview below: How long have you been on...

Palynziq Spotlight: Sara

Hi everyone! This week will be the start of my Palynziq spotlight series, where I'll be interviewing different PKU people about their...

What is Palynziq?

First of all, I'm not qualified to define Palynziq, so let me pull one from the Palynziq website: "When the PAH enzyme is missing or...

Goodbye Healthcare?

If you're Canadian with PKU, or even just a Canadian that has consistently large medical bills, you're probably thinking to yourself:...

The Challenge of Change

And we're back! It has been awhile since I've made a blog post, and I've been doing a lot of spotlights lately, which have been great!...

Maternal PKU Series: Jill

Hi everyone! This week's Maternal PKU story is from Jill, who experienced what it is like to have children both on and off diet. I'm...

Maternal PKU Series: Camille

Happy Monday! We'll be continuing our Maternal PKU Series and hearing from Camille and her story navigating the process. Thank you all...

Maternal PKU Series: Jessica

Hi Everyone! If you've been following my blog for awhile, you've been made aware of the hardships that come with having a metabolic...

PKU Spotlight: Mariah

Happy Monday! I'm so excited to share another PKU Spotlight segment with you! Today I'll be interviewing my friend Mariah! We met at PKU...

A Dad's Perspective: French Fry Frenzy

Dad Takeover! I asked my dad to write posts for my blog so that parents of children with PKU can see what goes on from a parent's...

Holidays

Happy Easter Monday! Jesus has risen! He is risen indeed! Easter looked pretty similar to other kid's Easters, minus the chocolate....

My Perspective

Hi Everyone! If you read my post from last week, you'll know that my dad wrote an entry about the early days of PKU management. He...

A Dad's Perspective: Baby Steps

Another one, written by my dad about early life with a child with PKU. This post is to let people who are having a hard time with their...

PKU Spotlight: Palynziq

In a previous post, I wrote about one type of PKU treatment called Kuvan. (Go check out the post if you haven't yet!) Another form of...

Birthday Parties

It's that time of year where kids are going back to school, and maybe your child is going to go to school for the first time. New friends...

A Dad's Perspective: The Diagnosis

Hi everyone! This one was written by my dad! As someone with PKU, I can only speak from my perspective, but here's a post for new parents...

PKU Spotlight: Jen

Hi Everyone! I'm so excited to share another PKU Spotlight segment interviewing my friend Jen! We met at PKU Day in Vancouver. We live in...

Elementary School: Lunches

My elementary school started when I was 3 years old, because the preschool I went to was inside my elementary school. My PKU wasn't...

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