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THE UNSEEN DISEASE

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Birthday Parties

It's that time of year where kids are going back to school, and maybe your child is going to go to school for the first time. New friends...

A Dad's Perspective: The Diagnosis

Hi everyone! This one was written by my dad! As someone with PKU, I can only speak from my perspective, but here's a post for new parents...

PKU Spotlight: Jen

Hi Everyone! I'm so excited to share another PKU Spotlight segment interviewing my friend Jen! We met at PKU Day in Vancouver. We live in...

Elementary School: Lunches

My elementary school started when I was 3 years old, because the preschool I went to was inside my elementary school. My PKU wasn't...

Treatment: Pegvaliase

Last week I talked about Kuvan being a treatment for PKU. I'm a responder to Kuvan and I can speak to how well it works for me! Pegvalise...

Treatment: Kuvan

Although there is no cure for PKU, there are a few treatments for it, one of them being Kuvan. The following is taken from Kuvan's...

Where's the baby?

This blog post is all about formula! In my last post I touched for a second on how I would reach for my formula after blood tests because...

I am NOT afraid of needles

So last week was a bit of a downer, so let's talk about how we as PKUers can make sure we are keeping our diet under control: BLOOD...

The Off Diet Diaries

Today's post won't be like my other posts. Usually, I post uplifting, encouraging, sometimes challenging but rewarding stories of victory...

PKU Spotlight: Francesca

Hi everyone! I wanted to do a little feature every once in a while called "PKU Spotlight", where instead of me talking about my...

PKU AWARENESS MONTH-The Diagnosis

May is PKU Awareness Month! Because we have a rare disease, awareness is more important than fundraising at this point. Although both are...

How Do You Get PKU?

Being diagnosed with PKU is kind of like winning the lottery honestly. Medicinenet.com states, "The approximate incident rate for PKU...

What is PKU? Buckle Up Science Nerds!

Before we get into this topic, I just wanted to highlight three reasons why I wanted to start this blog: 1. To bring awareness to the...

PKU and ME

Hello! Welcome to my first blog post! I'm so excited that you're here and reading this post! I have a few reasons why I decided to start...

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